tag:blogger.com,1999:blog-8635726896303448912024-03-05T12:55:51.057+00:00PatientView blogAbout PatientView (www.patientview.org)The RPV teamhttp://www.blogger.com/profile/09621958782087555777noreply@blogger.comBlogger43125tag:blogger.com,1999:blog-863572689630344891.post-51313721137823845142015-03-12T08:21:00.002+00:002020-08-07T14:08:59.877+01:00New support site
We have a new support site to go with PV2. help.patientview.org has how-to videos (short link to those is help.patientview.org/rpv) and new guidance for units, unit admins, and potential new specialties and hospitals.
Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com7tag:blogger.com,1999:blog-863572689630344891.post-82716481150666688232015-02-21T19:41:00.002+00:002015-02-21T19:45:57.614+00:00ComedyNice video from Portsmouth with a bit on PatientView. It's classified as Comedy - not sure about that ...
Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-48245459285298220242015-01-20T15:08:00.000+00:002015-02-21T19:53:31.435+00:00PV2 goes live todayResults not quite caught up to date yet, but almost all there, today we present PatientView 2. At the time of posting the new version isn't visible everywhere, but it should in the next few hours.
Note: up to date results are catching up, hope they'll be nearly complete at some point tomorrow.
Further information and some How-to videos at www.rixg.org/rpv, or our our YouTube channelNeil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com38tag:blogger.com,1999:blog-863572689630344891.post-6224629146874154632014-12-31T11:07:00.003+00:002014-12-31T23:00:38.681+00:00PV2: Please try it out nowExisting PatientView users can now log in to the Staging version of PV2 at staging.patientview.org. It has real data up to early December. Please test it!
You may be asked to change your password the first time you log in. That will only change it at the staging site, not at 'live' www.patientview.org. Passwords need at least 7 characters in PV2.  Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com21tag:blogger.com,1999:blog-863572689630344891.post-67088370041283220862014-09-14T16:46:00.000+01:002014-12-22T12:05:41.430+00:00PatientView 2 is on the way!
PatientView gives over 30,000 renal patients, and some with diabetes, immediate access to test results, letters, and other info.
It may have seemed quiet here recently, but behind the scenes we've been doing a huge amount of work. PatientView2 (PV2) is on the way! We're aiming for December launch. First-look screens:
Why PV2?
Half of logins are from Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com16tag:blogger.com,1999:blog-863572689630344891.post-40744611452831333112014-09-14T16:08:00.002+01:002014-09-14T16:08:22.521+01:00GP medicines on PatientViewWe're about to test a link to GP drug lists, so we'll be able to show what your GP thinks you're on as well as what your Unit thinks you're on. This is being tested in a few units first - list to follow of who's in line.
If it's working in your unit you'll see a notice asking your permission when you log in. You'll see it again on the Medicines page (and you can change your mind thereNeil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com2tag:blogger.com,1999:blog-863572689630344891.post-1837403323407715922014-04-18T19:23:00.002+01:002014-04-18T19:26:00.757+01:00GraphsWhen you click on Results, you are now offered a 'Graphic' option, or "see these results as a graph". This is Creatinine for someone starting dialysis:
For creatinine, higher numbers are worse. So for this patient, things got worse, then when they started dialysis, creatinine fell, but now it goes up and down before and after dialysis.
When you hover over a point on the graph, the numberNeil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com3tag:blogger.com,1999:blog-863572689630344891.post-44016590771550572022013-11-12T12:09:00.001+00:002013-11-12T12:09:30.481+00:00Renal PatientView becomes just PatientViewThe web address for RPV will change soon from renalpatientview.org to patientview.org. Going
to www.renalpatientview.org will still work, but it will take you to
www.patientview.org. It will look the same otherwise and we haven't been
hijacked! In fact patientview.org takes you there now. (Try it ... www.patientview.org)This is
because behind the scenes, one or two other specialties are Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-43947815888112135932013-06-03T12:44:00.000+01:002013-06-03T12:44:29.796+01:00How should we contact non-users?
RPV registration is well over 50% in a good few units, but some people haven't joined. We know a bit about these non-users. We also know that if you ask people why they don't use it, the most common answer is that they didn't know about it, or didn't realise that it could be useful to them. You can read more in our recruitment toolkit.
Next there are people who have Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com4tag:blogger.com,1999:blog-863572689630344891.post-54396942056620549432013-05-31T14:42:00.000+01:002013-05-31T14:42:31.731+01:00Secure messaging in RPV piloting now
We originally hoped the NHS would find a way to send secure messages between staff and patients, but it hasn't. So we're testing it inside RPV. It's piloting in Edinburgh at the moment, and if it works, next thing will be to talk to other units about switching it on, unit by unit.
It works by sending an email (or in the future maybe a text message) to tell you there's a Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com2tag:blogger.com,1999:blog-863572689630344891.post-68793439396218319572013-05-06T18:06:00.003+01:002013-05-06T18:06:31.302+01:00New Renal Disease Registers have first recruits
The UK's new Rare Renal Disease Groups have entered a new phase with Registries for each now opening for patients across the country. 13 groups will soon be able to enrol now in a process explained at www.rarerenal.org
(staff users see bit.ly/radaradminguide) This way, patients with rare diseases can be linked together
To share information with each other
To share their data for Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com2tag:blogger.com,1999:blog-863572689630344891.post-82346376977056299732013-05-01T21:38:00.001+01:002013-05-01T21:38:33.572+01:00We broke the forum
We posted questions about the value of the Forum in RPV earlier - and had decided to close it. It was never very heavily used. We know that many users were instead chatting away in online discussions elsewhere.
Two have been repeatedly recommended:
Facebook's Renal Patient Support Group (search for it in Fbk). This is open to anyone to read at the moment, but may have a Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1tag:blogger.com,1999:blog-863572689630344891.post-45959958592993224132013-02-23T09:47:00.002+00:002013-02-23T09:59:15.254+00:00Screenshots of new RPVThe facelift is planned for Tuesday February 26th and there may be a short period of down-time from late morning during which the site won't be available. There will be no unicorns, but here are a couple of screenshots:
One
comment has been that the tabs (for instance, where to click to see
Results), isn't so clear. These things can be fixed. Your feedback
welcome in Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com7tag:blogger.com,1999:blog-863572689630344891.post-60269710036032597242013-02-06T12:09:00.003+00:002013-02-23T09:47:57.952+00:00New look coming
There will be no unicorns in new RPV
RPV is going to look a bit different very soon, so when it does, don't be surprised. Although the appearance will be a bit different, it will be very similar to use.
So far it's looked the same since we started in 2005.
Behind the scenes these changes will also make RPV ready for Rare Disease Groups, and will make it possible to show information for Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com2tag:blogger.com,1999:blog-863572689630344891.post-49613683663734107402012-08-29T10:40:00.000+01:002015-01-05T15:23:57.158+00:00New results for RPV
We've had lots of requests for extra tests in RPV. We've been delaying an update to that because of two important projects running alongside RPV:
Rare disease info - see last post
Better Renal Registry data - the UK Renal Registry collects info on how renal units are doing across the UK.
Now we're nearly ready for our third major update to RPV data - the last one was 3 years ago.Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com6tag:blogger.com,1999:blog-863572689630344891.post-45047369870754013662012-08-24T17:41:00.000+01:002012-08-24T17:41:01.121+01:00Rare Disease Registers, coming soon via RPV
If you have a rare disease, it's trebly difficult.
It's difficult to find reliable information
It's difficult to find other people who have it
It can also be difficult to find doctors who know much about it
These aren't just frustrating, they can be dangerous. In response to this, a Rare Kidney Disease Initiative has been launched, based on Rare Disease Groups. At first there Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-40088229812461872362012-08-21T17:03:00.000+01:002012-08-21T17:03:00.699+01:00Recruitment: a new unit takes the lead
A year ago we mentioned Salford's recruitment drive. This August, Salford took over the lead from long-time trailblazers Bristol. At the end of July Salford recored 1211 RPV registrants. We compare this with the size of the renal unit as measured by number of patients on dialysis and with transplants; at the end of 2010 this was 837, giving a ratio of 145%. (As Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1tag:blogger.com,1999:blog-863572689630344891.post-25159313750806404072012-08-20T08:29:00.000+01:002012-08-21T09:40:00.283+01:0080% of renal units will soon have RPV
Green flags are units with RPV; Red - it's on its way
It's been great to welcome several more units during 2012. By the end of this year it should be available in adult renal units covering:
All of Scotland
All of Northern Ireland
All of the North of England from Yorkshire and Merseyside
All of the South West and South coast of England
(see the full map here)
RPV is already&Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1tag:blogger.com,1999:blog-863572689630344891.post-16676958274382530572012-08-19T16:10:00.002+01:002012-08-19T16:10:23.150+01:00An RPV publication, and In The News some more
A long-needed paper describing the development of Renal PatientView and responses to it has just been published in the open-access journal BMC Medical Informatics and Decision Making. Read it at biomedcentral.com/1472-6947/12/87.
Cherry Bartlett started working on the analysis of responses to RPV a long time ago and it's great to see it published at last. It should appear in its Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-86583763942885328722012-07-30T20:51:00.000+01:002014-04-23T09:41:54.277+01:00RPV is Open Source
RPV at NHShackday
The computer code behind RPV is 'open source'. This means that anyone can see, modify, and use it. There are many examples of successful use of open source approaches in mainstream computing. Many believe that it could lead to much better, more versatile and rapid coopoerative development of good technology in healthcare. It could save a load of Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com4tag:blogger.com,1999:blog-863572689630344891.post-70090695634546110022012-05-22T09:38:00.005+01:002012-05-22T09:39:23.165+01:00NHS Information Strategy promotes wider access to records
The new NHS Information Strategy, announced yesterday, promotes patient access to records at just about every level. Renal PatientView is mentioned as an example of good practice in Chapter 2.
They understated our numbers (now around 20,000) and got the number of units a little confused (52 out of 72) but no matter, it's good to see others catching on. And we should do more!Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com2tag:blogger.com,1999:blog-863572689630344891.post-70237959359039613232012-05-20T22:25:00.000+01:002012-05-20T22:25:04.044+01:00RPV in the news
Dr. Keith Simpson's presentation at the Health Informatics Congress in
London on May 3rd received a lot of attention. We were Twittered, there
was an article in the Guardian, and a good deal more interest so more might follow.Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-45701864768042803042012-05-19T21:00:00.004+01:002012-05-19T21:00:52.753+01:00New password strength checkerIf you go to change your password, you'll now find a colourful new thing that tells you how 'strong' your new password is - in other words, how easy a machine or person would find it to guess it.
Of course you need to be able to remember it too.
This isn't the only defence. If someone enters the wrong password too many times, the account is locked and you need to get in Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-81338929719273990232011-10-05T13:24:00.000+01:002011-10-05T13:24:06.665+01:001,000 UK renal patients looked up their records online yesterday
That's the headline of the latest RPV News which has just been published. We think that RPV remains the UK's only national system for looking up specialty records and resulst. There are now a number of local initiatives in other specialties, which is great.
We are sending paper copies of RPV news to RPV admins in every renal unit, but you can download a copy from the foot of Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-29445088372478551462011-08-31T23:10:00.000+01:002011-08-31T23:15:26.063+01:00Online records access: No longer a minority activity
The number of users has risen by about 30% over the last 12 months; RPV now has over 17,000 registrations. On an average weekday there are about 1,000 logins.
But really good news is that 8 renal units now have more than 50% of their dialysis and transplant (RRT) patients enrolled. Bristol is well ahead with 65%, almost two thirds of their RRT patients. The UK only has Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1