tag:blogger.com,1999:blog-8635726896303448912011-10-05T05:24:04.812-07:00About Renal PatientView (www.renalpatientview.org)The RPV teamhttp://www.blogger.com/profile/09621958782087555777noreply@blogger.comBlogger201100tag:blogger.com,1999:blog-863572689630344891.post-81338929719273990232011-10-05T05:24:00.000-07:002011-10-05T05:24:06.665-07:00

That's the headline of the latest RPV News which has just been published.  We think that RPV remains the UK's only national system for looking up specialty records and resulst.  There are now a number of local initiatives in other specialties, which is great.  We are sending paper copies of RPV news to RPV admins in every renal unit, but you can download a copy from the foot of www.renal.org/

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-29445088372478551462011-08-31T15:10:00.000-07:002011-08-31T15:15:26.063-07:00

The number of users has risen by about 30% over the last 12 months; RPV now has over 17,000 registrations.  On an average weekday there are about 1,000 logins.  But really good news is that 8 renal units now have more than 50% of their dialysis and transplant (RRT) patients enrolled.  Bristol is well ahead with 65%, almost two thirds of their RRT patients.  The UK only has 72 units, and RPV

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1tag:blogger.com,1999:blog-863572689630344891.post-89830628084171399092011-08-15T07:17:00.000-07:002011-08-15T07:34:57.580-07:00

We've made a new page at www.rixg.org/rpv to help explain some simple things to new users, and some new or more advanced features to existing users. Your comments welcome.   Ideas for what else should be shown? Your own videos welcome too.  Some videos of what you think, how you use RPV particularly welcome.   (Thanks to Marone and Flora) www.rixg.org/rpv

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-90173248243273828462011-08-04T06:52:00.000-07:002011-08-04T06:56:50.692-07:00

RPV locations August 2011 We've updated the map showing where you can get RPV.  It now shows the centres that don't have firm plans yet (the white flags).  Some of these are paediatric units which may not have an electronic records system to base it on.  Others - ask them! The link above is to the map in the RPV info pages at www.renal.org.  Go to the full Google RPV Map here.

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1tag:blogger.com,1999:blog-863572689630344891.post-38635474989025122262011-06-21T04:06:00.000-07:002011-06-21T04:06:31.513-07:00

Many people already share their login with staff at other hospitals, surgeries, or units.  Some people have asked whether it could be made possible for others to see your RPV records in an emergency, at a time when you aren't able to give permission because you are too unwell. Would this be a good idea? Alternatives:  show your RPV login in a card in your wallet, or even on an alert bracelet/

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com3tag:blogger.com,1999:blog-863572689630344891.post-34499725017067926882011-03-25T00:30:00.000-07:002011-03-25T00:32:08.264-07:00

We just added 'About Me', with which you can upload a photo and show some info about yourself that you'd like your renal team, or other medical teams, to know.  You can also put in 'Things I'd like to talk about'. At the moment you can print this out or show it online.  We may add a tick-box that would let you make this page viewable without a login, if you want. Look forward to feedback.

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-76336988737072393942010-08-31T11:24:00.000-07:002010-08-31T11:24:03.661-07:00

Spokespersons for RPVSometimes we are asked for user comments on RPV, for example for the Press.  Questions such as, what it's like to use, why you use it, whether it would be good if other branches of the NHS could do the same thing.  Would you be willing?  If so, would you mind sending an email to renal@ed.ac.uk, including Your name What treatment you're on (dialysis, transplant, neither)

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-64118768959460353212010-08-11T00:45:00.000-07:002010-08-11T00:50:01.399-07:00

You can now enter your own Blood Pressure, weight, or glucose when you are logged into RPV.  See Enter my ... at the top. These could be blood pressure measured at home, or at your GP surgery or elsewhere.  In the results tables, you can now see where each test result has come from. Things you have entered will be shown as from 'Patient'. Within the week we hope to add Comments, so you can

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com3tag:blogger.com,1999:blog-863572689630344891.post-8363329296395717442010-07-18T15:22:00.001-07:002010-07-18T15:39:28.320-07:00

The graph shows the number of patients registered with RPV in each unit as a % of each unit's size measured by number of dialysis+transplant patients. Click on the image for a larger version.The range is huge! Note that where it is at 100% that doesn't mean that every dialysis and transplant patient is using it - many patients who aren't on dialysis or transplanted use RPV too. About a third

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com0tag:blogger.com,1999:blog-863572689630344891.post-66869644612872399562010-06-17T04:49:00.000-07:002010-07-19T02:35:13.899-07:00

Manchester Central Conference CentreFor Renal staff, Patients and all interestedOver 13,000 users in 2010, logging in on average twice each monthTo see live test results and info on the InternetA pioneering project driven by the UK Renal communityUptake, impact and futureUpdates, masterclasses, 'What I'd like to see'Parallel patient and staff sessions in the afternoonFree registration but numbers

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1tag:blogger.com,1999:blog-863572689630344891.post-71187873699983576382010-04-29T02:57:00.000-07:002010-04-29T02:59:23.942-07:00

When logged in, you can now post comments to a discussion forum in RPV. Open to users only. Please use it and make comments. Does anyone know if there is a very simple guide somewhere for people new to this kind of forum?

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1tag:blogger.com,1999:blog-863572689630344891.post-77222151409814670132010-03-23T05:27:00.000-07:002010-03-23T06:07:31.303-07:00

Haemodialysis patients find it difficult enough to travel without extra obstacles. One of the problems is getting up to date enough results of Hepatitis B and C, HIV, MRSA. It has been suggested that a simple solution would be to post these on RPV, though we don't yet know how many units could easily do that. Should we? Relevant comments include: Renal patients are used to having frequent Hep B

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com7tag:blogger.com,1999:blog-863572689630344891.post-5569235802456657322010-01-13T03:50:00.000-08:002010-01-13T03:52:15.456-08:00

At last we've updated the info you get when you click on the headings at the top of the columns of Liver Function Tests on panel 5 of results, and at the top of Iron results there too.We've had several liver experts look over what we've written and they think it's OK. What do you think?ANT

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com2tag:blogger.com,1999:blog-863572689630344891.post-48086883855818207482009-08-07T05:04:00.000-07:002009-08-07T05:11:35.331-07:00

On results panel 5 many of you will now be able to see various liver function tests and results for iron and uric acid (which causes gout). This is in place for almost all units that use 'Proton', but if it's not there for your local unit, perhaps your local RPV admin may know whether it should be there soon.

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com6tag:blogger.com,1999:blog-863572689630344891.post-49035481034566436822009-06-15T13:41:00.000-07:002009-06-15T13:46:24.603-07:00

We've now passed 10,500 registrations. Sorry we missed the opportunity to offer a prize for the 10,000th user, but maybe we could look you up and ask to publish your photo. The new results we mentioned a while ago are just beginning to roll out in some units.

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1tag:blogger.com,1999:blog-863572689630344891.post-38811257936290311872009-01-07T06:28:00.000-08:002009-01-07T06:59:26.749-08:00

Canterbury has joined Renal PatientView and today has 2 patients enrolled. Welcome!RPV is now working in units where their local renal computer system is based on Proton (Vitalpulse adaptation of CCL-Proton), Vitaldata (Vitalpulse), iSoft's Clinical Manager (Guy's and Salford units have adapted this locally), eMed (Mediqal HI), and Canterbury adds the first RenalPlus unit.We hope that any

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com1tag:blogger.com,1999:blog-863572689630344891.post-85730416097724003332009-01-02T07:31:00.000-08:002009-01-02T07:35:34.891-08:00

Increasingly renal patients are writing online, as well as reading. Some examples highlighted on the UK Renal Association's newspages this week.Soon we hope to make it possible for RPV patients to communicate with each other, and to add blood pressures and comments to their own records.Happy New Year!

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com2tag:blogger.com,1999:blog-863572689630344891.post-46576253927274718812008-12-08T07:18:00.000-08:002009-06-15T14:04:06.035-07:00

It is in users' own interests to use strong passwords. To help us all do that we have added a link to Password Meter from the password change pages. Please use this to help us keep your account and thus the whole site secure.Rob Worth

Rob Worthhttp://www.blogger.com/profile/11205993834039954218noreply@blogger.com2tag:blogger.com,1999:blog-863572689630344891.post-66804637113188115532008-12-02T01:26:00.000-08:002009-01-07T06:54:26.794-08:00

We hope to add these tests to RPV early in the new year:bili, ast, alt, alp, ggt, ferritin, iron, transferrin, ironsat, urateWhat else would you like? Some are difficult because they are recorded in so many different ways in different renal units, but we are also looking for a way to add occasional tests in a list a bit like the list of letters.

Neil Turnerhttp://www.blogger.com/profile/07623179718004986592noreply@blogger.com8tag:blogger.com,1999:blog-863572689630344891.post-20718457913342147032008-11-25T09:09:00.000-08:002008-11-25T10:26:44.303-08:00

The RPV team were finalists at the BT-eHealth Insider Awards 2008, in the category 'Best use of ICT in patient and citizen involvement'.  We didn't win - but then we were up against two projects to do with sex education - but we had a great time. Keith Simpson, Neil Turner, Rob Worth, Maddy Warren, Andy Webb.  

The RPV teamhttp://www.blogger.com/profile/09621958782087555777noreply@blogger.com0