Tuesday, August 31, 2010

Volunteers to speak about RPV?

Spokespersons for RPV
Sometimes we are asked for user comments on RPV, for example for the Press.  Questions such as, what it's like to use, why you use it, whether it would be good if other branches of the NHS could do the same thing.  Would you be willing?  If so, would you mind sending an email to renal@ed.ac.uk, including
  • Your name
  • What treatment you're on (dialysis, transplant, neither)
  • Which unit you're from
  • Best way to get hold of you
and we'll put you on a short list of people that we can contact.  There might be some questions because of the meeting next week.  Thanks!

The pic is one of the latest that Beth Shortt did for Kidney Research UK.  There's another here and here.  

Wednesday, August 11, 2010

New - Enter your own ...

You can now enter your own Blood Pressure, weight, or glucose when you are logged into RPV.  See Enter my ... at the top.

These could be blood pressure measured at home, or at your GP surgery or elsewhere.  In the results tables, you can now see where each test result has come from. Things you have entered will be shown as from 'Patient'.
Within the week we hope to add Comments, so you can make comments about a particular day, or about your health, that can explain funny test results, or just as a 'blog'.

At the moment, all of this info is just on Renal PatientView, your renal team and GP won't know it's there unless you show and tell.  
Soon we want to test sending these results back to Renal Units and are looking for some units to be guinea pigs for this.