Wednesday, August 29, 2012

New results for RPV

We've had lots of requests for extra tests in RPV.  We've been delaying an update to that because of two important projects running alongside RPV:
  • Rare disease info - see last post
  • Better Renal Registry data - the UK Renal Registry collects info on how renal units are doing across the UK. 
Now we're nearly ready for our third major update to RPV data - the last one was 3 years ago.  These are the proposed additions, but it's important to remember that the availability of any of these will depend on them being available from the right computer system in your renal unit:

Tests and measurements
  • Full blood count - show MCV, and counts of the different types of blood cell (red and white)
  • LDH
  • Lipids - HDL, LDL, ratio (RPV already has cholesterol and Triglycerides)
  • Magnesium
  • Thyroid function tests: T4, TSH, T3
  • Pancreas tests: Amylase, lipase
  • Vasculitis tests: ANCA, Pr3, MPO
  • C3, C4 (?else)
  • Lupus tests:  anti-dsDNA antibodies
  • Observations: Temperature, pulse, oxygen saturation, inspired oxygen
  • Blood gases:  pO2, pCO2, H+, pH
  • B12, folate, red cell folate
Infection tests
  • Hepatitis serology (HBV, HCV)
  • Other serology (CMV, EBV, VZV)
  • HIV serology
  • MRSA results
  • PCR results for CMV, EBV, BKV, HBV, HCV
Dialysis
  • Access type
  • Access site (location and side)
  • Blood flow rate
  • Dialysis flow rate
  • Times per week
  • Minutes of dialysis per session
  • Dialyser name (name + size)
  • Dialysis session: date, vascular type and location. (?else)
24h Urine results (totals not concentration)
  • Volume
  • Protein
  • Creatinine
  • Creatinine clearance (crude, not normalised for surface area)
  • Urea
  • Sodium
  • Oxalate (?)
  • Calcium (?)
Appointment info
  • Appointments: date, time, who/what/where
Quality checks
At the same time as asking for these to be sent, we will be asking local IT system suppliers to check
  1. they are sending the Units of Measurement with each test
  2. that they have a mechanism for quality-checking their patient list

6 comments:

Neil Turner said...

24h urine suggestions added today

Neil Turner said...

Additional dialysis items and a few more tests added today. Also thinking of better ways to route data that is already sent to the Renal Registry (http://www.renalreg.com).

Neil Turner said...

C3, C4 added today

The Jams said...

Fantastic news! Looking forward to more data. Any chance of a download/export facility? I'd love to create my own graphs.

Andrew Bailey said...

This sounds great, but any news on when it's going to happen? This blog post is more than 18 months old, but as far as I can see, none of these results have made it to Patient View yet.

Incidentally, it would be great to add to the list more 24 hour urine electrolytes (potassium, magnesium), vitamin D, aldosterone and renin.

Thanks for the great service. Also intrigued to discover today that the project is open source - I'll be interested to take a look.

Neil Turner said...

Sorry that these have been so delayed - by ambition to do more with it in large part. We're now hoping for new results to start flowing early 2015.