Wednesday, August 29, 2012

New results for RPV

We've had lots of requests for extra tests in RPV.  We've been delaying an update to that because of two important projects running alongside RPV:
  • Rare disease info - see last post
  • Better Renal Registry data - the UK Renal Registry collects info on how renal units are doing across the UK. 
Now we're nearly ready for our third major update to RPV data - the last one was 3 years ago.  These are the proposed additions, but it's important to remember that the availability of any of these will depend on them being available from the right computer system in your renal unit:

Tests and measurements
  • Full blood count - show MCV, and counts of the different types of blood cell (red and white)
  • LDH
  • Lipids - HDL, LDL, ratio (RPV already has cholesterol and Triglycerides)
  • Magnesium
  • Thyroid function tests: T4, TSH, T3
  • Pancreas tests: Amylase, lipase
  • Vasculitis tests: ANCA, Pr3, MPO
  • C3, C4 (?else)
  • Lupus tests:  anti-dsDNA antibodies
  • Observations: Temperature, pulse, oxygen saturation, inspired oxygen
  • Blood gases:  pO2, pCO2, H+, pH
  • B12, folate, red cell folate
Infection tests
  • Hepatitis serology (HBV, HCV)
  • Other serology (CMV, EBV, VZV)
  • HIV serology
  • MRSA results
  • PCR results for CMV, EBV, BKV, HBV, HCV
Dialysis
  • Access type
  • Access site (location and side)
  • Blood flow rate
  • Dialysis flow rate
  • Times per week
  • Minutes of dialysis per session
  • Dialyser name (name + size)
  • Dialysis session: date, vascular type and location. (?else)
24h Urine results (totals not concentration)
  • Volume
  • Protein
  • Creatinine
  • Creatinine clearance (crude, not normalised for surface area)
  • Urea
  • Sodium
  • Oxalate (?)
  • Calcium (?)
Appointment info
  • Appointments: date, time, who/what/where
Quality checks
At the same time as asking for these to be sent, we will be asking local IT system suppliers to check
  1. they are sending the Units of Measurement with each test
  2. that they have a mechanism for quality-checking their patient list

4 comments:

Neil Turner said...

24h urine suggestions added today

Neil Turner said...

Additional dialysis items and a few more tests added today. Also thinking of better ways to route data that is already sent to the Renal Registry (http://www.renalreg.com).

Neil Turner said...

C3, C4 added today

The Jams said...

Fantastic news! Looking forward to more data. Any chance of a download/export facility? I'd love to create my own graphs.